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2016 Mobile Ad Summit
Tuesday
, 
September 
12
 at 
8:00am
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Tuesday
, 
September 
12
, 
2017
 from 
08:00
 - 
09:55AM
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About

Recent scientific advances in the field of gene therapy have raised the prospect of a new approach to treating rare, chronic and inherited diseases.

Are industry stakeholders prepared for how these breakthroughs may impact the health care market? How will payers cover therapies that are one-time treatments? How should regulators and policymakers approach these new treatment options to ensure affordability, access and incentives for further innovation?

The Hill will convene government leaders, health industry representatives, researchers, patient advocates, and other thought-leaders for a discussion about the impact of medical breakthroughs on the American health ecosystem and patients.

Headliners

Congresswoman Suzan DelBene (D-WA)

Member, Rare Disease Congressional Caucus

Congressman Patrick Meehan (R-PA)

Member, House Ways and Means Committee

Speakers

Paul Brayshaw

Hemophilia Patient Advocate

Gregory Daniel, Ph.D.

Deputy Director, Duke-Margolis Center for Health Policy

Tom DiLenge

President, Advocacy, Law & Public Policy Division, Biotechnology Innovation Organization

Jeff Marrazzo

CEO, Spark Therapeutics

Steve Miller, M.D.

Senior Vice President and Chief Medical Officer, Express Scripts

Moderators

Bob Cusack

Editor-in-Chief, The Hill

Kim Dixon

Policy Editor, The Hill

Agenda

8:00 AM

Guest Arrival + Networking Breakfast

8:25 AM

Welcome Remarks

Johanna Derlega, Publisher, The Hill

8:30 AM

Sponsor Remarks, Presented by Spark Therapeutics

Jeff Marrazzo, CEO, Spark Therapeutics

8:35 AM

View from Capitol Hill

Congresswoman Suzan DelBene (D-WA), Member, Rare Disease Congressional Caucus

Interviewed by Bob Cusack, Editor-in-Chief, The Hill

8:55 AM

Audience Q + A

9:00 AM

View from Capitol Hill

Congressman Patrick Meehan (R-PA), Member, House Ways and Means Committee

Interviewed by Bob Cusack, Editor-in-Chief, The Hill

9:20 AM

Audience Q + A


9:25 AM

Panel: Preparing Stakeholders for Breakthroughs

-  Paul Brayshaw, Hemophilia Patient Advocate

-  Greg Daniel, Ph.D., Deputy Director, Duke-Margolis Center for Health Policy

-  Tom DiLenge, President, Advocacy, Law & Public Policy Division, Biotechnology Innovation Organization

-  Steve Miller, M.D., Senior Vice President and Chief Medical Officer, Express Scripts

Moderated by Kim Dixon, Policy Editor, The Hill

9:50 AM

Audience Q + A


9:55 AM

Closing Remarks

Johanna Derlega, Publisher, The Hill

Join the conversation by following @TheHillEvents and use #Genes4Medicine

Sponsored by:

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